A cancer journey – scan result days make me nervous


So last week Rick had his three-month scans which included MRI and CT scans and the usual bloodletting. Scan day is emotionally draining and exhausting. Reminders everywhere of how far we have come … and we don’t want to go backwards.

Yep … and it never fails. Despite the anxiety, we chuckle every time we spend the day at MD Anderson. There are new things to learn. This time the lab where Rick has bloodwork in the Mays Building went all techie. We used to fill out a slip of paper with pertinent patient information before dropping it in a little plastic basket and wait to be called up to the desk. The paper slips have been replaced with electronics. Progress? Yesterday, when we arrived at check-in to see Dr. Campbell, all the iPads, except one, were out-of-order. Rick’s clinic went all techie a while ago. Not complaining mind you! I can relate! Heck … after replacing my sim card and getting a new iPhone, I am still dropping calls.

So to put life for us in perspective … since his diagnosis of Stage IV Kidney Cancer just over two years ago … Rick and I have welcomed two grandbabies. Ben, 18-months-old now, was born down the street in the medical center on one of Rick’s long immunotherapy infusion days. And little Zelie was born two weeks ago to our son and lovely daughter-in-law, Kate. Even Jacob has been deeply involved in Rick’s journey. Now four, Jacob came to wish his Pop-Pop good luck two years ago on the day Rick’s tumor/left kidney was removed. Jacob also walked the MD Anderson’s Boot Walk with us this past November while Baby Ben slept in his stroller. You don’t have to tell me we are blessed.

So just how did it go yesterday with lab results? Our visit with Dr. Campbell, our oncologist, and his lovely PA, Simi, was all we had prayed for. MRI … stable. CT … stable. Rick is just over a year from getting kicked off the clinical trial and receiving no cancer treatment. He still itches all the time, mostly from the inside, which tells us the immunotherapy is still working.

I asked Dr. Campbell how patients who are on Rick’s clinical trial are doing because I want to know. My editor, the lovely Cynthia, has trained me well. I had my steno pad all ready for details and statistics. Dr. Campbell indicated 55% of those on Rick’s immunotherapy clinical trial drug ARM of Bevacizumab and Nivolumab are having positive results. In the coming months, the trial will end and it will be number crunching time. I will be there with pen in hand to probe for any updates. It is my hope these two drugs will be the answer for all Clear Cell Kidney Cancer patients … not just for the 55% with positive results. That is probably just 50 people.

And now for the really great news … we don’t go back for FOUR months!!!! Can I get an amen?

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